I also have a CH kitty
I also have a CH kitty, and his picture (Buddy) is on the CH Kitty Club website. They used to have a forum....I don't know if they do anymore, but any question you have--they can answer for sure.
Buddy isn't as severely disabled as some of the CH kitties I've heard about. He can walk around the house (he looks a little drunk, tho) and he can climb up on the couch, my bed, etc. He can use the cat pan, too, altho he prefers the plastic mat under the cat pan.
For the most part, it seems like almost everyone says that the cat will not get worse as it gets older--unless something else is going on. Buddy actually did worse as a young kitty. As he got older, and gained a little weight, it seemed to give him a better "center of gravity" and he did somewhat better.
He sometimes kind of falls over, and his front and back legs extend out, and they are really stiff. It's kind of a "posturing" thing. I don't think he can help it, and once it starts, he can't stop it. It lasts for only a few seconds, though. I'm sure there are alot of people here that know about CH kitties, but feel free to ask me questions anytime you want....Beth